Let's talk about it!

In the past few weeks I've received a few emails from people just starting out on their corn allergy journey. While I don't wish a food allergy on anyone, I do get get the fun of sounding like a grumpy old timer.  I like to fire up the Commodore 64 and reply, "Back when I was diagnosed, there wasn't anything on the internet for people with corn allergies. Just advice from the allergist on not eating popcorn and corn chips! Get away from that processed food before you drop dead."  I usually like to follow up such sage comments by putting on mom jeans, black socks, brown sandals and yelling at those darn kids to get off my lawn.

In the interest of being a good corn-free citizen who has survived an entire decade with a corn allergy and is now enjoying a large corn-allergy and corn intolerant community on the web here are a few good spots to hang out while figuring out how to live a corn-free life.

Facebook:
Corn Allergy and Intolerance Group  https://www.facebook.com/groups/cornallergy/
I recomend this group as an interesting place to start for people with either a corn allergy  or intolerance. Lots of people with different levels and types of reactions and good discussions. The group varries from people with a strict scientific testing perspective to people who are willing to try anything labeled a cure so there are lots of interesting discussions. Very friendly and helpful members who share info and support one another. The majority of very active posters are from North America, but there are members from across the globe.
Some group jargon that will help you communicate and understand a typical phrase that would be put at the end of a post about a product. If I posted saying something was safe for me, I might write: "I am a swift reactor to contact, inhalation and ingestion, only allergic to corn. I'm corn free, I can't do corn-lite at all!"

 Corn Lite: You can eat some foods that are cross contaminated with corn in the processing or have a small amount of corn derivatives and are either ok or willing to put up with the discomfort. Mostly people with a food intolerance or a non-anayphyactic allergy.

Corn Free:You (try to) avoid all corn containing products. Usually due to severe allergies and/or anaphylactic reactions.

Reaction Levels: immediate or swift reactor  vs slow or delayed reactor -- this is the amount of time it takes you to develop symptoms to exposure to your allergen, it can be min. for an allergy or much longer in the case of food intolerances.

Sensitive to: Contact (skin), Inhalation (fumes/dust), Ingested (food)

Corn Allergy Awareness https://www.facebook.com/groups/60220625854/
Smaller group, more focus on Canadian products but lots of cross over with the Corn Allergy fb group. Same friendly and helpful vibe as above.

Corn Freedom https://www.facebook.com/pages/corn-freedom/264504334407
Take this page with a grain of salt -- this mom w/ a corn allergic or intolerant child is interested in advocacy, which is great, but is at the beginning of her food allergy journey and IN MY OPINION still is eating/feeding a lot of corn intensive products and mistakenly promoting them as corn free. It may be that her child is able to tolerate corn lite foods, but she sees them as corn free -- it is a typical part of the journey and she is getting more comments from people with more experience w/ corn allergy.  As with any food recommendation -- use caution. More interesting to watch than to participate in for me.
 

Good FB Info pages -- not all corn specific

Corn Free Foods List https://www.facebook.com/CornFreeFoods NOT all corn free, many products are just low corn/corn lite and are tolerated by people with a corn intolerance and need to be tested CAREFULLY by you! There are only 4 safes thing for me on the the entire list, so proceed with caution. This is a good place to start if you are trying to find safe foods, but may foods on there need to be retested.  There is a visual Pinterest board maintained by fb folks that is a little more up to date -- http://pinterest.com/stripeysocks/corn-free-visual-the-list/ Assume EVERYTHING is corn-lite and test carefully. It is a good starting point but don't assume that anything is totally safe for you.

Asthma and Allergy Foundation https://www.facebook.com/AAFANational  Good info feed.

Team Anaphylaxis  https://www.facebook.com/pages/Team-Anaphylaxis/159511227477594  Mostly focused on advocating for children's issues, good info for communicating about threatening allergies.

Food Allergy Mom Doc https://www.facebook.com/FoodAllergyMomDoc  Interesting and thought provoking posts from a doc w/ two allergic children.

 American Academy of Allergy Asthma and Immunology https://www.facebook.com/AmericanAcademyofAllergyAsthmaandImmunology 
Good info on current research for people w/ a science background.

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Outside of Facebook
Avoiding Corn Forum on Delphi -- http://forums.delphiforums.com/avoidingcorn/start  The long running, sprawling and full of info forum. There is talk of the hosting platform transferring to a more usable format for mobile devices.

You are not alone! Feel free to send me an email (cornallergy at gmail (dot) com ) and go connect with some of your peers.

Back to Basics

I'm fighting the human version of Ick today; it can't be cured with a little table salt the way my mom used to resurrect our goldfish. The table salt cure contains corn, by the way. People at the office have been calling in or their partners are full blown sick, I have a little bit of a little something mild. The best description I can come up with is I feel like a horse that is off her food. When I couldn’t face my coffee yesterday, I knew something was wrong.

So, I'm not sick enough to actually take a sick day and I have TONS to get done if I actually want one of the three days off this weekend. So, if could treat myself normally, it would be take two Tylenol and a Tums and get to work. That's not going to work. I could get a bunch of extra sleep after the benadryl and the Epi-Pen and the IV benadryl...but that is too much drama for a low energy day. So, alternative sources for common medicines it is.

After the makers of Children's Motrin decided to change their flavors last fall and add sorbitol and citric acid to the new fun tropical fruit and blue raspberry flavor, I lost my last safe treatment for fever. At that point it was time to suck it up and trial the original form of aspirin, white willow bark. No, I didn't go chew on a tree, I went to Whole Foods and talked to their supplements person to find what looked safe for me. (Put it through the poison protocol and it worked). White willow bark contains salicin and was the basis for the synthesis of aspirin. An easier option is to get compounded Tylenol made for you, but at $1 pill, it can get a bit pricy. (Talk to your doc before you make any changes in what you use!)

Tums are out too, so I go back to that cure-all from the last time I trekked to Mukitnath, near the Kingdom of Mustang, in Nepal. Peppermint Tea. Altitude sickness? Peppermint Tea! Guardia? Peppermint Tea! Lost Passport? Peppermint Tea! Snow Blindness? Peppermint Tea! It's good for everything, so I'm sure that it will help with a little ick. Ick? Peppermint Tea!

I'm going to make some peppermint tea and take my willow bark so I can go be a productive member of modern society. Sometimes you have to go back to basics for safety. Next time you can't find a product you need without corn in it, try stepping back to its earlier form. Back to basics is working for me.

If that doesn’t work, Peppermint Tea!